Pop star Jesy Nelson recently opened up about the challenges she faced when trying to seek medical help for her twin babies. She revealed that her daughters, Ocean Jade and Story Monroe, were diagnosed with spinal muscular atrophy type 1, a rare genetic condition that leads to muscle weakness and can be life-threatening if not detected early.
Jesy shared that despite her concerns, doctors initially dismissed her worries due to the twins being premature. She recounted how her mother had noticed the lack of movement in the babies’ legs, prompting further investigation. After months of medical tests, the twins were diagnosed with SMA Type 1, leading Jesy to describe the experience as the most heartbreaking time of her life.
The singer emphasized the importance of early detection of SMA, expressing her hope to raise awareness about the condition and its warning signs. SMA is caused by a mutation in the SMN1 gene, affecting nerve cells in the spinal cord responsible for muscle movement. While there is no cure for SMA, early diagnosis and treatment can help manage symptoms and preserve muscle function.
Jesy also highlighted common symptoms of SMA, including muscle weakness, floppiness, and respiratory issues. She urged parents to be vigilant for signs such as limited leg movement and unusual body shapes in infants. By sharing her story, Jesy aims to educate others about SMA and the need for proactive healthcare interventions.